HYPERTENSIVE REGISTRY

[emcvs5100]

Dear All,
I would like to share with you my vision to create one day a global registry in which
will be captured all various parameters regarding the hypertensive patient .
Starting from the age that first diagnosed , to different treatment options that have been adopted
around the globe. I assume that this will be functional and result a great tool for future guidelines.
The European Society of Cardiology has Heartscore http://www.escardio.org/policy/preventi ... score.aspx
and from what I've seen recently the American Heart Association has its own https://www.heart360.org/Default.aspx but only works for U.S. residents.
Finally, I'm encourage you to put all our efforts together, each one of us with his little piece of work to create a masterpiece of a Global Hypertensive Database
where tons of information will be captured and used adequately.

Kind regards
Dr. Kouvoussis Emmanuele
emcvs5100

[dgourlis]

In essence this is a wonderful idea, but has serious problems for its implementation, especially in the EU countries. I made an attempt 2 years ago to design such a protocol, which would link all hypertension centers together, with which we could enter all the required patient data, including full history, lab tests, echos, images, and medications. However, the EU laws are very strict concerning patient databases and this obstacle needed a lot of bureucracy in order to be circumvented. I gave up on the efforts, due to lack of time and financial resources.

But lets not fool ourselves, this is the way of the future, and sometime we are going to have such a tool in our offices.

[emcvs5100]

I'm not referring to a protocol.
I'm referring to a Registry under the auspices of the ESC,ESH,ASH,AHA,ACC where only registered professionals will have access to
that huge server. Try a look to HeartScore.

[dgourlis]

My mistake. I meant "software protocol"

[HRBlack]

I do like this idea but I am not sure how we would do it. I would be very much in favor of a registry for " resistant hypertension." This is a subject for which prevalence is difficult assess.

[dgourlis]

I do like this idea but I am not sure how we would do it. I would be very much in favor of a registry for " resistant hypertension." This is a subject for which prevalence is difficult assess.

Thats certainly a most interesting area to investigate, provided stringent criteria are set. Over 60% of resistant hypertensives referred to me are simply receiving suboptimal diuretic therapy.

Nevertheless, I will ask the Hellenic society for the study of Hypertension to have this topic in its agenda for the next session.

I

[emcvs5100]

Drs. Black and Gourlis,
I very much appreciate your interest and positive opinion re my original idea for a Global Hypertension Registry,
where an immense amount of data through this knowledge will be captured and leveraged for future guidelines.

In case you are wondering how we would do it, I think that HeartScore is a representive example.
Herebelow are some options:
1.Each Society, through its members, will have access via registration to the databank or
2.American Society and European Society of Hypertension, will create an Access-based Databank where all HTN-physicians of the two regions
will have access. Bear in mind that various specialists are involved in HTN issues
like endocrinologists,nephrologists,cardiologists,internists and GPs.This is a huge amount of info that will come in.

Try to imagine information such as:
1.Smoking,alcohol,salt diet and physical activity
2.Demographic data (race,gender,age, etc..)
3.Metabolic syndrome prevalence
4.How MS is treated by the physicians ( do they ever think of treating patients with MS and high normal limits of HTN with antihypertensive Rx ?)
5.Re ''resistant'' hypertension. I certainly agree and I've thought of this critical issue.
I have in my drafts, as databank's questionnaire, a related section. As you already know, the need to differentiate a truly ''resistant hypertensive patient''
from a so- called ''resistant'' patient has not been met.
6.How high BP is related with high BUN levels?
7.Microalbuminuria levels, if available, upon registration but if not, the physician will be conscious next time to ask it.
8.Physicians' prescription habits, compliance to the latest guidelines, and patients' Rx compliance .

And remember : ''Great inventions come from small ideas''